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How To Manage Your Life After Being Diagnosed With Cauda Equina Syndrome (CES)

Cauda Equina Syndrome is a severe medical condition, which requires urgent surgical intervention. If patients with cauda equina syndrome fail to get treatment quickly, the situation may result to severe complications such as unbearable lower back pain, impaired bladder, difficulty walking, numbness, paralysis, as well as other physical and neurological problems.

CES is a syndrome where the nerves at the base of the spinal cord causing them to become compressed. This interferes with the functioning of these nerves in relaying messages to the pelvic organs, feet, and legs.

The severity of the symptoms of this condition varies depending on the extent of nerve compression. However, it is important for patients to understand that cases of acute Cauda Equine Syndrome that causes nerve damage are sporadic.

According to studies, CES develops suddenly for some patients while for others it is usually a gradual onset of symptoms. Here is a discussion of all that you want to learn about the condition.

What is Cauda Equina Syndrome?

This condition is an emergency but rare medical disorder that needs urgent surgical treatment. As mentioned above, CES results when the roots of the spinal nerve of the patients are compressed. Therefore, the patients may require immediate treatment[1] to protect you from severe damage that can potentially lead to incontinence or lasting legs paralysis.

The condition affects a group of nerve roots, which are in the lumbosacral spine at the bottom part of the spinal cord. These bundles are known as cauda equina hence the name of the syndrome. Cauda equina nerves relay impulses to and from the pelvic organs, legs, and feet.

What are the Causes of this Condition?

According to studies, Cauda equina syndrome is more common in adults as compared to children. However, children with a spinal congenital disability or suffered spinal injury[2] are at higher risk of suffering from the condition. The following are some of the major causes of CES:

  • Stenosis or narrowing of the spinal canal
  • Severe rupture or bulging (herniation) of the disk, which compresses the nerves in the lumbar region (Major cause)
  • Spinal infection, fracture, hemorrhage or inflammation
  • A birth defect such as abnormal blood vessels connection (arteriovenous malformation)
  • A malignant tumor or spinal lesion
  • A complication that results from serious injury to the lumbar spine from stabbing, car crash, gunshot or fall
  • Postoperative lumber surgery complications

Some of the patients may get CES after surgery to treat a herniated disc in the lumbar area. The risk factors, in this case, are similar to lumbar herniated disc or spinal stenosis risk factors.

Cauda Equina Syndrome Awareness

What are the Symptoms of Cauda Equina Syndrome?

Diagnosing CES may be a considerable challenge as it comes with varying symptoms and may develop gradually in other patients. Besides, the symptoms may also be similar to other conditions, but if you experience any of the following conditions, it is advisable to consult your doctor immediately:

  • Altered or loss of sensations[3] at the back of your legs, inner thighs, buttocks, feet or legs that keeps on worsening or getting severe. This may include difficulties in feeling yourself in the parts that are in contact with a saddle when sitting on a horse, especially in a saddle (known as saddle anesthesia)
  • Sudden sexual dysfunction
  • Serious lower back pain
  • This may be a steady and dull pain experienced across the pelvis and or the pelvis area, potentially causing stiffness or discomfort.

  • Weakness, pain, and numbness in one or both legs that makes it hard for you to get up from your seat or even walk.
  • Experiencing bowel or bladder function issues, which may include having difficulties in getting rid of waste or urine or finding it hard to hold it (incontinence)

How Cauda Equina Syndrome Diagnosed?

CES may be hard for patients to diagnose as mentioned earlier but doctors can do it. Here are the methods that you should use to confirm CES diagnosis:

Medical History

This involves the doctor taking questions on the on your medical history, which includes the symptoms, health and your daily activities. The approach helps the doctor to determine whether CES is the underlying cause of your symptoms.

Physical Examination

After the medical history, the doctor may need a physical test to examine your sensation, strength, alignment, stability, reflexes, and motion. Besides, you may as well need to take some blood tests.

A Computed Tomography (CT) scan

Computed Tomography
The CT scan uses special x-ray equipment to help in assessing the damage to the spinal nerves and other symptoms. However, it is advisable for a patient to discuss any recent illness, a possibility of being pregnant, medical conditions, allergies as well as the medications that he or she is taking before taking a CT scan.

Magnetic Resonance Imaging (MRI) Scan

The MRI scan helps in assessing the condition of your spine by producing 3-D images using computers and magnetic fields. Therefore, the MRI is the standard method of confirming the situation and for planning treatment through a surgical procedure[4]. Remember, the sooner the surgery is done, the better the result and the easier it is for patients to experience a sound recovery and avoid lingering nerve damage symptoms.


The myelogram involves contrast material injection into the spinal canal before taking an X-ray. The method helps in pinpointing the force acting on the nerves or spinal cord.

What are the Treatments for Cauda Equina Syndrome?

As mentioned above, patients with CES should seek urgent treatment to help in relieving pressure on the nerves. Therefore, if the diagnosis confirms that you are suffering from the CES condition, surgical treatment must be quickly done to avoid causing lasting damage like sexual dysfunction, loss of bowel and bladder control, paralysis of the legs, or other severe issues.

It is advisable for the patients to ensure that they have the operation within 48 hours experiencing the symptoms mentioned above.

However, you may also need corticosteroids in high doses depending on the underlying causes of CES. Corticosteroids help in reducing swelling while for an infection patients are given antibiotics. If your CES is as a result of a tumor, then you may need chemotherapy or radiotherapy after surgery.

It is important to understand that your body may still be unable to assume its optimal functioning even after treatment. This is determined by the degree of the damage that has occurred and the duration of nerve compression.


Therefore, patients may still experience some bladder and bowel dysfunction, leg pain, lower back pain and other physical problems for a while. Consequently, if your surgery goes well, then it may take you some years to recover your bowel and bladder function.

Finally, most people think that the neurological damage caused by the CES is permanent, but studies have shown that this might not always be the case. This is because long-term management may allow patients to regain a near normal voiding of the bladder despite having a poor prognosis after the surgery treatment[5].

Therefore, although there are risks involved in the surgical procedure just like in other invasive methods, the normal functioning of the body can be restored after some time.

What Happens If CES Becomes Chronic?

If the damage suffered is permanent, treatment of the condition through surgery may not always be possible. In such cases, your CES becomes chronic, and therefore you will be required to learn ways that will help you adapt to body’s functioning changes. Here you will understand that to manage to live with the condition you need both emotional and physical support.
Therefore, it is advisable to seek the support of your family members in your care. You can as well seek support from different professionals depending on the state of your condition. These include:

  • A continence advisor
  • A physical or occupational therapist
  • A sex therapist
  • Social worker

Physical Therapist

It is also important to join a Cauda Equina Syndrome support group to help you get the much-needed motivation to manage your life well with the condition. Besides, being with people who have the full understanding of what you are going through is more helpful than other ways when it comes to living with chronic CES.

Finally, here are the tips that you should consider in case you have loss of bowel or bladder function to help you manage the condition:

  • Use of proper personal hygiene and taking enough fluids to prevent infection of the urinary tract
  • Empty the bladder completely 3-4 times a day with a catheter
  • Wear protective pants and pads to stop leaks
  • Using gloved hands in clearing bowels and clearing waste or use glycerine enemas or glycerine suppositories if need be.
    Finally, it is advisable to consult your doctor in case of pain to get medication that can relieve it or if you experience any bowel or bladder problems[6].


Overall, Cauda Equina syndrome is a rare medical condition as mentioned earlier but a problem that needs urgent attention. Therefore, it is important to ensure that the disease is addressed upon detection of any of the symptoms listed above.

This helps in preventing severe nerve damage and ensuring that you can achieve a healthy recovery after treatment. This can be achieved by paying attention to the symptoms once they develop.

Keep in mind, it important to remember that your body might take some time to get back to full function depending on the extent of the damage even after treatment. For those who experience severe or permanent nerve damage that makes the condition chronic, there still ways to help manage their lives well even with CES. Always put that on the mind!

Image Credits
Feature Image: Shutterstock.com
In Post Image: Shutterstock.com & visually.com

Contributor : Janice (Joint Health Magazine)

Janice Carson is a freelance journalist who specializes in Joint health issues and provides treatments and solutions to the sufferers. She is having medical writing experience of many years. She is contributing her work to jointhealthmagazine.com.

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